I definitely should be sleeping but after laying here for the past 6+ hours it’s just not happening. I can honestly say though, thank God I’m not in pain. However that’s probably why I can’t sleep, because of the meds that are taking care of this new diagnosis of Trigeminal neuralgia. Just put it on the list of everything else that makes me who I am. The Original Broken Girl. I AM grateful that they figured out what was wrong. And I AM grateful that this time I walked away without feeling like “it’s all in your head, Sid” Funny enough... it is, just not in the way I’ve felt for the past 7 years.
So here’s my plan, I’m going to make the most out of all of this... I’m sick. I’ve been sick pretty much all of my life with something or another.
- I was born with some weird lung issue.
- Then diagnosed with Type 1 Diabetes (that’s the insulin dependent one) when I was 4.
- I pretty much don’t have ANY of the organs that can be disposed of anymore (and that happened when I was young too).
- I’ve had brain trauma and broken bones.
- I have some weird chronic bone spur issue that occasionally causes problems (like my hips will give out and/or they cause intense shooting pain down my leg).
- I live every day basically with dehibilitating chronic migraines that nothing seems to work (I’ve tried almost every drug, I’ve done Botox, I even go to a specialist at the University).
- I was diagnosed with fibromyalgia but I don’t think that’s it. The pain isn’t localized enough for it to be, I don’t think. But, the pain is there and it makes walking pretty awful for me, so I do walk with a cane outside of my home, or if it’s bad enough.
- I have random mini seizures and tremors all over my body.
- And a bunch of other random things that no one seems to worry or think anything of (like when all the nerves in my body send jolting pain in spurts for no real reason, or my memory most of the time is like trying to talk to a foreign 6 year old when figuring out words).
- And then ontop of all of this I just got out of the hospital because what we thought was tooth pain that then was some sinus issue, ended up to be this amazing Trigeminal Neuralgia. Which basically is that all of the nerves in my face are incredibly sensitive and if anything presses or pinches them it causes the most excruciating pain I’ve ever had in my face.
I am in NO way looking for sympathy or anything like that. I don’t need that at all. What I need is someone willing to fight for me. Some medical angel out there that is willing to go all the way to figure out what it is that’s going on. I don’t want to feel like everyone thinks I’m just making this all up. It’s awful. I wouldn’t wish ANY of this on ANYONE.
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